Business Profile
NORD provides education, patient assistance programs, clinical care resources, research support, and policy advocacy to improve the health and well-being of people with rare diseases.
Patients with rare diseases and their caregivers, clinicians and researchers, patient organizations, healthcare policy makers, and donors/partners involved in rare disease advocacy and support.
A holistic, nationwide ecosystem that combines patient education, direct support (including financial and travel assistance), centers of excellence, research registries, and policy advocacy within a single nonprofit platform; with a long history (since 1987) of pioneering patient assistance programs.
Value can be realized immediately through access to information and helplines; tangible program benefits (e.g., financial assistance, travel support) typically implemented within weeks to months depending on program eligibility and resources.
Ana, a patient with a rare cancer, describes how NORD's support and foundation assistance provided critical financial relief during the pandemic, highlighting the impact of access programs on patient well-being.
A national nonprofit that advances education, patient support programs, research facilitation, and policy advocacy to improve outcomes for people with rare diseases.
Patients with rare diseases, caregivers, clinicians and researchers, patient organizations, healthcare providers, and policymakers working in rare disease spaces
A holistic, evidence-based platform delivering education, direct patient assistance, research connectivity, clinical care resources, and policy influence to empower the rare disease community nationwide.
Not specified in content
Not a product with standard pricing; funded through donations and partnerships; includes donation options (Donor-Advised Funds, Stock, Planned Giving) as noted in site content
Based on matching: problems solved, target roles, key features, industries
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One mission. One approved plan. Every external action attributable.